NATIONAL TALK BLACK – 31/03/2025
On todays National Talk Black via NIRS – National Indigenous Radio Service we have:
Dr. Erin Evans, Industry Genomics Network Alliance (InGeNA) Chief Executive Officer, talking about Australian experts and families urge rural parents to screen newborns for deadly silent killer. A monumental breakthrough in newborn health has arrived, as Sickle Cell Disease (SCD) is now officially included in Australia’s Newborn Bloodspot Screening (NBS) program. This pivotal change brings hope to countless families, ensuring that babies at risk of this life-threatening inherited blood disorder are identified early, paving the way for immediate care and a brighter future. Sickle Cell Disease is the most widespread inherited blood disorder across the globe, yet for far too long in Australia, many babies have suffered the consequences of late diagnoses. While only 45% of adults living with SCD were born in Australia, an alarming 83% of children with the condition are Australian-born—illustrating a devastating gap in early detection. Without screening at birth, this disorder can remain hidden, only revealing itself in the form of debilitating, life-threatening complications. For rural and remote families, where medical facilities are often hours away, early screening is even more vital. By detecting SCD at birth, this program can help prevent severe complications, lengthy hospital stays, and even fatalities. With over 300,000 newborns screened annually, this initiative has the power to transform outcomes for families across the country.
Deline Briscoe and Airileke, Gaba Musik Producer and Artistic Director, talking about the upcoming “Meganesia” show here in Cairns, Saturday, 12th April! The Gimuy Walubara Yidinji Elders Aboriginal Corporation and community are honoured to host the opening of the Meganesia show. The evening, respectfully supported by the Gimuy Walubara Elders with greeting and welcome with the spirit of cultural connection and protocol. Meganesia is a powerful contemporary dance work presented by Gaba Musik at Bulmbaja. This will be a preview of the main event for PNG’s 50 year celebration of independence in Port Moresby. Artistic Director, Airileke (PNG) and Producer Deline Briscoe (Yalanji) bring together some of the most celebrated dancers, musicians and choreographers from PNG, Zenadth Kes, West Papua and Bama (First Nations) drawing from shared ancient history, dances, family ties and songlines. The contemporary music created by PNG Australian Producer Airileke, alongside Sorong Samarai, and First Nations artists Yirrmal & Deline Briscoe is the soundtrack. Prepare yourself for a fresh urban mash up of Naka Beats, Yalanji Soul, Yolngu Roots and Island Party Vibes. Before the end of the last ice age, 11’000 years ago, Papua and Australia were one land mass… Meganesia. Join these Bama, PNG and Zenadth Kes performers who are coming together in Gimuy (Cairns), for one night only, to bring you Meganesia. To purchase tickets, visit the link below!
https://www.eventbrite.com/e/meganesia-tickets-1302883683169
Have something happening in your community, and you want to talk about it, give us a call on 1800 422 416. Or Give us a text on 0457 140 550!
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